This page keeps you up to date with Kayley's condition and operations

18th JULY 2008 :

BEEN BACK TO THE HOSPITAL AND KAYLEY HAS LOST MORE WEIGHT THEY HAVE NOW DECIDED A FURTHER 5 OPERATIONS AND TESTS ARE NEEDED WHICH SHE WILL BE HAVING IN THE SUMMER HOLIDAYS PLUS A 2 WEEK STAY IN HOSPITAL FOR A INTENSIVE REHAB THERAPY TO HELP HER MOBILITY.

AUGUST 2008.

KAYLEY HAS HAD SEVERAL OPERATIONS THIS MONTH INCLUDING A ENDOSCOPY,COLONOSCOPY,EGG,MANOMETRY,AND GASTRIC EMPTYING STUDY SHE COPED REALLY WELL AND AGAIN NOT ONE COMPLAINT FROM HER THEY HAVE NOW FOUND OUT THAT KAYLEYS NERVES IN HER STOMACH DONT WORK THEREFORE HER STOMACH MUSCLES DONT EITHER CAUSING HER STOMACH NOT TO EMPTY. I HAVE SPOKEN TO THE CINCINNATTI HOSPITAL FOR SICK CHILDREN IN AMERICA AGAIN AND THEY NOW FEEL THEY CAN HELP HER HAVE A NORMAL LIFE. 

Oct 2008.

Kayley has been back and had a mickey peg fitted . She has had a MRI , Endoscopy , Manommetry , pellet study and physio.

Dec 2008

Results have now confirmed she has Dumping Syndrome , Gastroparesis , CVS .

Feb 2009

Kayley is back in hospital and has had another pellet study , a new feeding tube fitted , and physio.

march 2009
 Kayleys condition has worsened she is noe not tollerating yet another feed and is again losing weight. She has become very withdrawn and quiet. The sickness has come back with aggression and she is now in bed for most of the time

April 15th 2009

Went back to the hospital today they are now going to fit Kayley with a Gastric Pacemaker to help with her sickness and also changing her feed yet again.

Aug 2009  -  Jan 2010

Various investigations and hospital stays , peg change , biopsy's and physio.